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June Krahn -- sajun
member since 10/2003 -- Gold
9,038 hits
Last Login: Last Day
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Have:~ Faith in God, wonderful family and friends~ Want:~A cure for All movement disorders~
Title:Inspection Supervisor Home: Kenosha, WI USA
Company: American Motors From: Kenosha, Wisconsin USA
Industry Category:Universities: Gateway Technical Institute Accounting for Business Bob Miller School of Real Estate Granada Hills CA
Industries: Interests: Internet, websites, books, animals, family, music, movies, walking and Dystonia support groups,
Experience:
RealtorRealty World


This page is meant to help people with movement disorders such as Parkinson's, Dystonia, Essential Tremor and others. Nothing will be for sale just free information and resources to help anyone in the world.



Tip for you, when you are on someones page you would like to have for a friend check the box so they can see your email address and add you. They will receive an email and say yes if they wish to be a friend. ;o)

Dystonia Parkinsons Tremor and other Movement Disorders

(DBS) Deep Brain Stimulation surgery gives many people their lives back.

See Paula Schneider before and after Deep Brain Stimulation surgery,
She lived with Dystonia 12 years before DBS.


20/20 Interview on DBS and Dystonia,Check out Ed Czwalinsky who had DBS and was able to play football again after DBS surgery.


"Kids with dystonia" video,,

Do You or Your Child have a movement disorder?
Dystonia is the third most common movement disorder after Parkinson's Disease and Tremor, affecting more than 300,000 people in North America. Dystonia does not discriminate, it can affect any age group, and all races and ethnic groups. People all over the world suffer from Dystonia. Do you or someone you know suffer from Dystonia? You Can Make a Difference in Someone’s Life by being informed.



Check out Tyler’s Tyler's Hope for a Dystonia Cure,
He is a brave and courageous young man.


To sign a guest book type in connoranderson, aidang, rileysegrue, kristinatimmons, kendallhall, or jaredhymams http://caringbridge.org/ http://caringbridge.org/ These are our young brave troopers who inspire all of us.

Some more of our kids and families.
*Riley Segrue - Cory (mom), Chrys Beagell (grandmother)
*Kamri Beagell - Casy (mom)
Chrys Beagell (grandmother), Cousin of Riley
Tyler Staab - Michelle
*Connor Anderson - Melanie
Yam Preisler - Debi
Manny - Marisa Martinez
*Kristina Timmons - Denise
Alex & Jacob Goldman - Lauren
Jake Silverman - Nancy
*Aidan Grasmick - Sharry & Chad
Jared Irhyams - Linda
Nicholas Richie Calder- Penny
*Kendall Hall - Christina
Madison - Tracy
Demarius Coleman - Latasha

>
DBS Surgery Support Group

DBS for Dystonia Click Here -

- Drd Central includes bb board -
Adder
The Dystonia society
DMRF BB boards -
Dystonia foundation
The Bachmann-Strauss Dystonia and Parkinson foundation Inc -
National Institute of neurological disorders and stroke -

The Parkinson's Appeal for Deep Brain Stimulation -

This is the home of The Parkinson's Appeal for Deep Brain Stimulation which is dedicated to securing the future of the Functional Neurosurgery Unit at the National Institute of Neurology, London who specialise in the research and application of DBS for treating neurological conditions including Parkinson's Disease; Dystonia; Tremor; Multiple Sclerosis. The team is led by Professor Marwan Hariz and includes three of the worlds acclaimed leaders in this specialised field. They performed the very succesful operations on Joy and Amy Westall who have early onset generalised dystonia.
 
The site contains a lot of useful information. Including the frequently asked questions booklet about DBS for Dystonia.

The National Organization Of Rare Disorders - Social Security Disability Secrets


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